For more than 30 years, Independence Plus, Inc. (IPI) has provided the best homecare to medically complex, ventilator-dependent patients. Over the years, many of those patients have been diagnosed with chronic obstructive pulmonary disease (COPD), a progressive condition that makes it difficult to breathe. An estimated 30 million individuals in the U.S. are affected by COPD, and over half of them suffer from symptoms and do not know they have the disease.
The arrival of ABC’s new sitcom “Speechless” has opened the door for conversations with families like ours who have a special needs child. We’ve found it may be hard for family and friends who want to stay updated on our son’s progress, but may not fully understand the nuances of his routines and therapies. That’s why we sent them notes entitled “Everything you wanted to know about Jackson but were afraid to ask” in hopes this would encourage more people to engage, ask questions, and be an active part of his journey.
“Once I emerged from the depths of futility, I viewed my diagnosis as an opportunity to spread awareness.”
Three years ago Eric Von Schaumburg was at that sweet spot in life. He was 29 years-old with an amazing job, a wonderful girlfriend, and a future as bright as one could hope for. Then in early summer of 2013 he received the shocking news that he has ALS, also known as Lou Gehrig’s disease. Faced with a devastating progressive neurodegenerative disease that has little treatment option and no cure, the Chicago man says he spent a short amount of time coming to terms with the battle ahead of him, and then quickly turned his focus to doing whatever he could to inspire others.
José Solorzano was just a teenager when he made a decision that changed his life forever. He says he was “young and dumb,” and found himself involved in gangs.